For Aimee Seddon even a loving hug from a family member can cause unbearable pain.

The brave six-year-old has recessive dystrophic epidermolysis bullosa, a severe form of a disease known as EB, which leaves her with painful blisters and scarring. Her parents wrap her from neck to toe in special bandages to guard against its effects and are pinning their hopes on pioneering stem cell research to find a cure.

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