Boy loses sight, hearing, ability to walk to rare genetic disease

It's a deadly genetic disease that can catch parents by surprise. Find out why this disease often flies under the radar and what advocates are doing to increase a child's chance of survival.

http://www.wdsu.com/news/local-news/new-orleans/Boy-loses-sight-hearing-ability-to-walk-to-rare-genetic-disease/-/9853400/18988568/-/13rkbkwz/-/index.html?absolute=true