Lawmakers weigh costs of screening for rare, fatal disease

Kentucky lawmakers are weighing the benefits of testing newborns for a rare, usually fatal disease versus the projected $250,000 annual cost to detect it. The House is considering a bill that would require the state to test all newborns for Krabbe disease, a genetic disorder that is usually fatal by age 2. Some infants tested at birth have lived productive lives after receiving a stem cell transplant from cord blood.

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